Live With Intention

"Live with intention. Walk to the edge. Listen hard. Practice wellness. Play with abandon. Laugh. Choose with no regret. Appreciate your friends. Continue to learn. Do what you love. Live as if this is all there is.”-- Mary Anne Radmacher

Lyme email to Dr. Oz.

I received this email from a friend who knew I had been cured of Lyme disease.

"Dear members of Lyme Disease Awareness,

This past month, Dr. Mehmet Oz (from Oprah and Friends) interviewed Andy A.
Wilson, the director of the Lyme disease documentary, "Under Our Skin" (www.underourskin.com). Dr. Oz is just beginning to learn about Lyme and he is asking for our help.

During this interview Dr. Oz issued the Lyme community a challenge to prove
we have a voice. He made a point of mentioning that he is interested in the
number of responses he receives...Lets make it a number he cannot ignore!

There are more than 3,800 members in this group alone - imagine if we ALL
took the time to send just one email?!

To listen to the full interview:
http://www.zshare.net/audio/51988431783ad036/

To email Dr. Oz:
link here

Please take 5 minutes to write Dr. Oz and tell him your story, or your loved
one/friends story! Dr. Oz is especially interested in those who have been
cured, however, he's still learning and we need to educate him that even
those of us who have not been cured are helped by long term antibiotics and
that more research is needed so that we can find a lasting cure.

The chance of having our story, told on The Oprah Show is monumental and
this is a challenge we can't afford to ignore!

Thank you!

-The Lyme Disease Awareness Administrators"

Here is what I wrote:

"I understand you are interested in stories from the Lyme community. I can understand your emphasis on those cured. Most who suffer with Lyme are so severely sick that to relate to someone in the midst of the illness only gives them more validity to staying ill. I, myself, have been cured. Prior to the diagnoses, I had been diagnosed with early Alzheimer's, Parkinson's, Plausible MS, etc. My family and I were on a wild rollercoaster ride. However, even during the deepest possible downward swings, I would take pride in accomplishment...I felt grateful for the little things, such as, being able to make my kid's lunches, and being able to walk to the bathroom on my own. The diagnoses was inspired through the prayer of my church and my family. Once diagnosed and confirmed, I was put on an intense regimen of Doxycycline 2 x daily for 5 months. It's amazing to me what I can accomplish! I was diagnosed last October (2007) after being in a wheel chair during our family trip to Disneyland. Today, I am getting a campaign together to run for Mayor of Saratoga Springs, have graduated in our city's CERT (Community Emergency Response Team), the Legislative V.P. in the PTA at the elementary school, in charge of the school Knowledge Bowl program (http://harvestknowledge09.blogspot.com), have been blogging since my diagnoses (http://issuesoncall.blogspot.com), and etc. Paramount to wellness success is getting outside of yourself and back into the functioning's of the world around you. By doing this, I have had mile markers to reach. By reaching those mile markers I have learned that I can reach further. From each mile marker I reach I receive a more positive sense of self and learn more about my talents and abilities. Most important is having a great support system. My husband is the best on the planet! My children are gold! The people in Saratoga Springs, Utah are the best! Without the support system I have, I would not be the person I am today!"

If you have Lyme or have been cured of Lyme, please share your story too!

The Relaxation Response. Mind Tools.

Here is a portion of a great article by Kellie Fowler at MindTools.com

“The Relaxation Response,” by Dr. Herbert Benson, ...teaches the importance of relaxing each day, and even how to do it.

Based on studies at Boston’s Beth Israel Hospital and Harvard Medical School, Dr. Benson’s quick and easy relaxation techniques have immense physical benefits, from lowering blood pressure to a reduction in heart disease. The book explains how anyone can benefit from learning and perfecting relaxation techniques. In doing so, Dr. Benson created a book that is relied on by healthcare professionals and authorities to treat the negative effects of stress.

By learning to invoke the relaxation response once or twice a day for just ten minutes at a sitting, one can effectively lower blood pressure and gain tranquility in their emotional life, making them more successful both in the workplace and at home.

Try the following 6-step relaxation response the next time you feel anxiety or stress:

Sit quietly in a comfortable position.

Close your eyes.

Deeply relax all of your muscles, beginning at your feet and progressing up to your face. Keep your muscles relaxed.

Breathe through your nose. Become aware of your breathing. As you breathe out (exhale), say the word, “ONE”, silently to yourself. For example: breathe IN…OUT, “ONE”, -IN…OUT, “ONE”, etc. Breathe easily and naturally.

Continue for 10 to 20 minutes (depending on your schedule). You may open your eyes to check the time, but do not use an alarm. When you finish, sit quietly for several minutes, at first with your eyes closed, then with your eyes opened. Do not stand up for a few minutes.

Do not worry about if you are successful in achieving a deep state of relaxation. When distracted, simply return to repeating “ONE.”

Besides relying on this technique a few times each day, I regularly use it to get to sleep at night, especially after a long, hard day or before a tough next day. It’s simple, fast, reliable and most importantly, it works!

M.S., Parkinson's, or Simply, Lyme Disease?

Have you been experiencing symptoms of illness, knowing that something is wrong but the doctors cannot seem to find the answer and have begun looking at you as a psycho case?

The symptoms constantly change and migrate. They may begin as nagging nausea or swollen lymph nodes for long periods of time, but then you find that you're used to the doctors saying they can't find anything wrong and you get settled into your life again.

Of course, once your able to get along with the nausea and swollen lymph nodes (or whatever symptoms you begin with), along come migraines, unbelievable fatigue, stiff joints, loss of memory, speech impairment, tremor, and seizures. This becomes the process of your life...if you can call it living.

This is exactly what I've experienced over the past (at least) 8 years, although they say I most likely have had Lyme for up to 20 years. During my series of ill years I experienced five bouts of mono, was misdiagnosed with Bipolar Disorder, told I had Lymphoma, misdiagnosed with Fibromyalgia, Chronic Fatigue, experienced depression, anxiety, misdiagnosed with plausible Multiple Sclerosis, and more.

I wouldn't take PLAUSIBLE as the diagnosis.

What was the final diagnosis?

Through a string of events, including physical, mental and spiritual, I was able to visit a doctor who ran some tests (ELISA and the Western Blot) that showed positive for Lyme Disease.

Why didn't I get tested for Lyme Disease earlier in this series of illnesses? Well, on a follow-up with one of my other physicians, I found that he actually tested me with the ELISA test and it came back negative, which is very common as testing for Lyme is not completely accurate.

Click Here For Statistics By The CDC

Based on where I live, the doctors were not likely to test me. However, when I look at those statistics and look at my resulting diagnosis, I take other statistics into perspective, which make me exclaim about why there is not an alert for doctors to perform the simple blood test for Lyme Disease.



Take, for example, the fact that Lyme Disease mimics symptoms of Multiple Sclerosis.

MS World Map Link

"Multiple sclerosis (ms) is the most common, disabling, neurological condition, to affect young adults in the world today."

If you have a patient who you suspect has MS and have prescribed a lumbar puncture that does not come back as positive for anything abnormal, even with brain lesions (which can occur with Lyme Disease), wouldn't you test the patient for Lyme Disease before stating that they must have PLAUSIBLE MS and prescribing injections that may cost them thousands of dollars per month (not to mention lasting side-effects)?

What about Alzheimer's? Tremor and memory problems along with similar symptoms that may cause a doctor to diagnose someone with Alzheimer's can occur with Chronic Lyme Disease (being infected with Lyme Disease for a length of time).

Alzheimer's Site Link

"Every 72 seconds someone in America develops Alzheimer’s"

Parkinson's Disease is the same as the above diseases. This is a disease that is very hard to diagnose and there is actually not a very firm procedure of diagnoses. Wouldn't doctors be wise to perform a simple blood test to verify that the symptoms are not Lyme Disease?

Parkinson's Disease Link

"How is Parkinson disease diagnosed?
The process of making a Parkinson disease diagnosis can be difficult. There is no X-ray or blood test that can confirm Parkinson disease. A physician arrives at the diagnosis only after a thorough examination. Blood tests and brain scans known as magnetic resonance imaging (MRI) may be performed to rule out other conditions that have similar symptoms. People suspected of having Parkinson disease should consider seeking the care of a neurologist who specializes in Parkinson disease."

Fibromyalgia is another mysterious diagnosis, and a growing number of people are being diagnosed and treated with medication on a daily basis.

Fibromylagia Statistics Link

"Prevalence Rate (Fibromyalgia): approx 1 in 73 or 1.36% or 3.7 million people in USA"

Chronic Fatigue Syndrome is another mysterious illness, yet I found a quote regarding Lyme Disease under "Chronic Fatigue Syndrome" on the following link.

Chronic Fatigue Syndrome Link

"Lyme disease and related tick-borne infections. Lyme disease does not always present acutely with a rash, and less than half of sufferers recall a tick bite (the nymphal deer tick is the size of a poppy seed, and secretes an anesthetic to prevent the host from feeling its bite). Furthermore, the characteristic joint pain is not always present. For these reasons Lyme can be difficult to diagnose, particularly in its later stages, at which point symptoms are virtually identical to those of CFS.[118] The accuracy of blood tests for Lyme remains highly controversial, especially since they depend on an effective immune system response, which many researchers believe is compromised by the disease. As a result, some clinicians believe Lyme is under-diagnosed."

If you know anyone with symptoms as I have listed above, please have them tested for Lyme Disease. Finding you have Lyme disease can relieve a lot of stress from yourself (a loved one) and your family. The treatments may take time to work, however, just think of the consequences of continuing down the road of a diagnoses of Parkinson's or Alzheimer's instead of a simple diagnoses with an actual treatment and hope for the future.

Sources:
www.cdc.gov
www.themcfox.com
www.alz.org
www.parkinson.org
www.wrongdiagnosis.com
en.wikipedia.org
www.hopkins-arthritis.org